Seizure First Aid – from Epilepsy Ireland
** SIGN UP WITH YOUR EMAIL TO GET ZOOM LINK: ** https://mailchi.mp/c9dbbeea9d7c/4ebtn5da0wOur friends over at Epilepsy Ireland are providing a…
News & Events
IAD 2025 is Coming And we’re Lighting Up BLUE!
Ireland Turns Blue for International Angelman Day February 15 On Saturday 15 February, prominent landmarks in Ireland and around the…
Run with ASI – Clontarf Half Marathon Nov 2024
Join Us for the Clontarf Half Marathon & 5 Mile Run in Support of Angelman Syndrome Ireland! This November, we…
Irish Times – For patients and parents of people suffering from rare ailments, struggling for better is a fight worth taking
For patients and parents of people suffering from rare ailments, struggling for better is a fight worth taking Joan Johnston…
Colin Farrell Starts Foundation in Honor of Son with Angelman Syndrome as He Opens Up About Their Life
Angelman Dad Colin Farrell opened up about life with his son James in this beautiful interview with People magazine Original…
In the News: Kerry community walk a great success!
This weekends Irish Independent featured one of our wonderful Angelman families from Kerry. Little RóRó inspired over 250 people to…
Summer Picnic 2024
Join us at Clonfert Farm & Mini-zoo this July 21st at 12pm for a family picnic. There’s plenty to keep…
Podcast: Crystal talks to Ulysses Neuro about life with Angelman Syndrome
In this episode, hosts Ciara and Clare speak with mam Crystal to discuss life with her 3 year old son…
Irish Examiner – Families of children with rare diseases wait three years for genetic counselling
Families of children with rare diseases wait three years for genetic counselling Families are waiting up to three years for…
Video – Jack & Jill and the Johnstons
Meet Joan Johnston, who is Mum to Leo, aged five. Leo was diagnosed with Angelman Syndrome just three weeks before…
Podcast: Danielle Cullinan Opens Up About Her Daughter’s Angelman Syndrome
Danielle Cullinan talks on the Everymum podcast about her daughter Claras diagnosis, the journey to getting a diagnosis and parenting…
Radio – mother of a boy with Angelman Syndrome has said his diagnosis was discovered thanks to an “on the ball” consultant.
https://www.newstalk.com/news/without-diagnosis-think-youre-problem-mother-son-angelman-syndrome-praises-consultant-840584 The mother of a boy with Angelman Syndrome has said his diagnosis was discovered thanks to an “on the…