Northern Ireland Angelman Syndrome families get together at Castle Espie in Co. Down on International Angolan Syndrome Day.
Angelman syndrome is a rare neuro-genetic disorder characterized by severe intellectual and developmental disability, sleep disturbance, seizures, jerky movements (especially hand-flapping), frequent laughter or smiling, and usually a happy demeanour. The international day takes place on the 15th as the syndrome effects the chromosome 15. Its appropriate that the day takes place after Valentines day as the children are very caring and loving.
Abby and Graeme McKechnie from Ballywalter with their daughter Emily(4) and their son Logan(8) who is affected by the syndrome. The family have a service dog Wookie who will be trained to bring medication to Logan along with being able to detect seizures.
Contact Emma Stockade for further information 07709185265